The iLIVE Project is part of the program for the Summer School that is organized each year by the International Collaborative For Best Care For The Dying Person. This event will take place at the research and training centre of the Cudeca Foundation from 18 to 20 May. The collaborative, created in 2014, brings together researchers from different countries and aims to improve research in Palliative Care and care for patients in the last days of life. Cudeca Foundation is one of the institutions that is part of this initiative and is also one of the institutions taking part in the iLIVE research.
The presentation will take place under the title ‘Live Well, Die Well: Emerging Results from the EU-Horizon 2020 funded iLIVE Project. Carl Johan Fürst, from Lunds University (another of the institutions taking part in both initiatives), will be in charge of this presentation. The project is facing the end of the research activities this year and is already working on the scientific reports.
There are three main studies conducted within the iLIVE consortium. The cohort study has compiled data from hundreds of patients and caregivers in an ongoing process that aims to understand better the needs and preferences of all parts involved. The Medication Study has worked in the development of a tool to aid doctors to optimize the prescription of medicaments. And the Volunteer Study has developed a process to create volunteer groups in palliative care wards within health centers.
Summer School
The aim of the Summer School is to "to bring together a global group of leading thinkers, practitioners, and researchers, who share a vision for a world where all people experience a good death as an integral part of their individual life, supported by the very best personalized care", as stated in the event programme. The programme also works to promote and develop the 10/40 Model, which provides guidelines for the best care for people in the last days of life. It also creates a collaborative environment to encourage group work among facilitators working with this model.
Working groups
Participants will be able to attend different working groups. One of them will be in charge of this network of facilitators for the 10/40 Model. Another of these groups will be for the Cui-Dar programme, which is a Cudeca Foundation initiative also based on the 10/40 model. The sessions of this working group will be held in Spanish.
A third group will work on the Serious Illness Care Program, developed at Harvard University. The activities carried out within this programme will be structured for research. Finally, there will be a working group dedicated to the development of postdoctoral work in the framework of the Marie Sklodowska network, which helps doctoral candidates to develop their work.
Registration for the conference can still be done through the Cudeca Institute website.